Anyways, they told us they took Kassidy off the ventilator this morning!!! OH MY GOSH!! Are you freaking kidding me?! I thought it was still a couple days away. Little mad they didnt call and tell us, but i'll let it slide because woo hoo she is now on cpap!!! No more tube down the throat, well I take that back she still has a feeding tube, but not the same....We were so surprised!! We hurried and got dressed and drove down to see her. I could not even wait!! They said she was being so feisty this morning and kept pulling at her tube. She was kinda that way yesterday too and doing her silent cry. So the NNP came in and said "lets pull that tube out of there" and she has been happy and doing good ever since! Little struggles, but nothing that she cant handle!! The only downside to the cpap is it covers up more of her face. I was wishin to see those little lips. They have to ween her down on this and then she will be on the high flow, which is just a nasal cannula. That should hopefully take a week or so. Such big news today!!
She also had fer first eye exam last week and everything looked like they expected. Still immature vessels, but they will follow up every week until she goes home. They have great eye Dr's there that are world renowned. They monitor so closely because the vessels could grow too fast causing an increase in pressure which in turn causes the retina to detach=blindness. It is called ROP, retinopathy of prematurity. She is at an extremely high chance of this, but if they catch it she can have lasik and hopefully help it. So my nerves will be on end each day she has this test, just like the brain ultrasounds. I just pray for gradual steady growth!!
She is just doing wonderfully, amazing us all by tolerating her feeds, breathing well, having normal bowel, heart and lung sounds. Also she has steady head growth and weighs a whopping 3 lbs 5 oz. My big girl!!
We spent about 5 hours with her today and loved every minute! She had her nurse "L" today which is always a good time. She is hilarious!! She also got a new roommate today. He is a week younger than her and his parents are one of the couples we really enjoy. I read 3 stories to her, which she loved and even put Clint to sleep, seriously the man can sleep anywhere.
It was fun being there today, just what I needed to turn my frown upside down!!
So, it looks a little scary, but it is wonderful!! I think it kinda looks like head gear, haha. We even got to hear little squeaks out of her today. Now that the tube is gone she can find her voice. Can not wait to hear her cry!!! Music to my ears!!
The new machine, smaller and quieter.
The old machine
Her little urine cup of bows. I bought her red white and blue ones so she could be festive. Hopefully she gets off the cpap soon so she can accessorize again. :)
Kassidy's stuff. The brown bear is her 1 month birthday present from nurse "M"
My mom made her princess sign and the pink bear is from a friend, it is wearing her little sunglasses from when she was under the bili lights.
4 comments:
I have been wondering how things are going. I am glad I visited your blog and heard about the progress with your sweet baby girl. You continue to be in my thoughts and prayers.
Hello there! This is Deanne Jacobs from the ward and one of your new VT's. I just discovered your blog through Alexis's blog and thought I'd take a peek. I do hope that is OK. I am so happy to hear so much progress with your sweet Kassidy. She is such a cutie.
yeah that makes me so excited! i cant wait to see her when she comes home! love you ruth
Yay Kassidy! I'm so happy that she is moving along in the growing process, she's been in my prayers for sure!
I'm sorry about Kameron too. There will not be a day that goes by when you don't miss him and get sad. But as each day goes by that's one day closer to when you get to be with him again! I keep having dreams that him and Nora are buds in Heaven. ;)
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